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To Milestones...

     I am embarrassed to admit that I never did a baby book for Conner. For many reasons really. I never found a baby book that fit his journey - specifically being in the NICU, being delayed and not doing the things full-term normally developing babies do. I was already reminded daily that Conner was behind, I didn't need a book asking me when he started sitting independently or when he started saying "Mama." When Conner was 4 days old, I started a CaringBridge page to keep family and friends up to date and since then that has sort of served as Conner's unofficial baby book. 

Conner's CaringBridge ➔

     My love for Shel Silverstein has grown since Conner was born. Who doesn't love Shel Silverstein, I ask!? His poems are humorous, sometimes dark and twisted, but my favorites are the ones that provide perspective on life and motivation to continue moving forward. My current favorite Shel Silverstein piece is above and it resides in Conner's therapy/playroom as a constant reminder to me that more is always possible, in fact, ANYTHING is possible. 

 

First St. Patrick's Day! Conner is 1/8 Irish! 

First St. Patrick's Day! Conner is 1/8 Irish! 

One month old - a huge milestone for a micro preemie!

One month old - a huge milestone for a micro preemie!

First Easter! 

First Easter! 

First time with only nasal canula support!

First time with only nasal canula support!

42 days old - First time to hold Conner...worth the wait! 

42 days old - First time to hold Conner...worth the wait! 

Heavy weight - hitting 2lbs!

Heavy weight - hitting 2lbs!

Transported to another hospital - challenging day, but a major milestone!

Transported to another hospital - challenging day, but a major milestone!

2 months old and chugging' along at his new NICU! 

2 months old and chugging' along at his new NICU! 

Fenway celebrated a birthday too! 

Fenway celebrated a birthday too! 

Thunderin' up for Conner's 3rd birthday! His neonatologist is arguably the biggest OKC Thunder fan in the world (no joke)!

Thunderin' up for Conner's 3rd birthday! His neonatologist is arguably the biggest OKC Thunder fan in the world (no joke)!

100 DAYS OLD! Another excuse to celebrate and give the NICU staff a sugar high

100 DAYS OLD! Another excuse to celebrate and give the NICU staff a sugar high

First bath in a "tube"

First bath in a "tube"

First Mother's Day!

First Mother's Day!

First Father's Day!

First Father's Day!

More sugar - Four (or fore) months old! 

More sugar - Four (or fore) months old! 

First 4th of July - too bad we didn't have a view of the fireworks in District 9

First 4th of July - too bad we didn't have a view of the fireworks in District 9

3 milestones in one picture - first time out of his isolette, first time outside of his hospital room AND first tornado warning. Welcome to Oklahoma, big boy! 

3 milestones in one picture - first time out of his isolette, first time outside of his hospital room AND first tornado warning. Welcome to Oklahoma, big boy! 

Half a cake seems like a great way to celebrate - Happy half birthday, Con-Man! 

Half a cake seems like a great way to celebrate - Happy half birthday, Con-Man! 

Conner's first hearing test - slept through and passed with flying colors!

Conner's first hearing test - slept through and passed with flying colors!

Car seat test Not pictured: Mom freaking out because if he passes then we get to take him home! What!?

Car seat test
Not pictured: Mom freaking out because if he passes then we get to take him home! What!?

Conner has left the building! 

Conner has left the building! 

Puppy love - they called a truce!

Puppy love - they called a truce!

7 months old! 

7 months old! 

First smile captured on camera! That is a big grin! 

First smile captured on camera! That is a big grin! 

Too busy talking to smile for his 8 month picture!

Too busy talking to smile for his 8 month picture!

First Halloween - Charlie Brown and Snoopy!

First Halloween - Charlie Brown and Snoopy!

First and best frown captured on camera.

First and best frown captured on camera.

9 months old! No hair, don't care! 

9 months old! No hair, don't care! 

Gobble, Gobble! Happy Thanksgiving! 

Gobble, Gobble! Happy Thanksgiving! 

First spoon feeding - rice cereal beats a bottle anyway! 

First spoon feeding - rice cereal beats a bottle anyway! 

Monkeyin' around at 10 months old! 

Monkeyin' around at 10 months old! 

The greatest season of all - Merry Christmas! 

The greatest season of all - Merry Christmas! 

New Years! 

New Years! 

First EEG and a difficult day for Mom

First EEG and a difficult day for Mom

11 months old and not too thrilled.

11 months old and not too thrilled.

First road trip - Heading to Cook Children's in Fort Worth, TX

First road trip - Heading to Cook Children's in Fort Worth, TX

Huggin' it out after Mom gave me my first ACTH injection. 

Huggin' it out after Mom gave me my first ACTH injection. 

Officially free of hypsarrythmia and Infantile Spasms - plus we met Ralph the therapy dog! 

Officially free of hypsarrythmia and Infantile Spasms - plus we met Ralph the therapy dog! 

When you go 5 hours in the car without emptying an ostomy bag - whoa! 

When you go 5 hours in the car without emptying an ostomy bag - whoa! 

My first Valentine's! 

My first Valentine's! 

Hanging with my best bud, Fenway!

Hanging with my best bud, Fenway!

Sending birthday balloons to our sweet Caden. 

Sending birthday balloons to our sweet Caden. 

One year old and moon faced (Thanks to high dose steroids)!

One year old and moon faced (Thanks to high dose steroids)!

The peak of his moon face - cheeks for days! 

The peak of his moon face - cheeks for days! 

Post ostomy reversal surgery - holding mom's finger for comfort. 

Post ostomy reversal surgery - holding mom's finger for comfort. 

My new accessory - NG tube with a bridle. 

My new accessory - NG tube with a bridle. 

My first REAL bath! No more sponge baths!

My first REAL bath! No more sponge baths!

Getting fitted for my first pair of AFOs...not too sure about this!

Getting fitted for my first pair of AFOs...not too sure about this!

Tuckered out after my first pool party! 

Tuckered out after my first pool party! 

Feed me! 

Feed me! 

First swing! Weee!

First swing! Weee!

Coloring in OT! That is fridge worthy! 

Coloring in OT! That is fridge worthy! 

Post G-Tube surgery.

Post G-Tube surgery.

First official game of peek-a-boo! Still an all time favorite! 

First official game of peek-a-boo! Still an all time favorite! 

Home Sweet Home.- celebrating 1 year post discharge day!

Home Sweet Home.- celebrating 1 year post discharge day!

First Airplane Ride! He did great! 

First Airplane Ride! He did great! 

Sitting on the ground outside like a big kid for the first time!

Sitting on the ground outside like a big kid for the first time!

First snow fall! 

First snow fall! 

First piano recital!

First piano recital!

We wear tank tops when it is 70 degrees in February. Why not? 

We wear tank tops when it is 70 degrees in February. Why not? 

2018 Winter Olympics on the porch...70 degrees in February! 

2018 Winter Olympics on the porch...70 degrees in February! 

Sending birthday balloons to Caden. Happy birthday, sweet boy. 

Sending birthday balloons to Caden. Happy birthday, sweet boy. 

Too excited to turn  TWO! 

Too excited to turn  TWO! 

Patiently waiting to smash his birthday cupcake!

Patiently waiting to smash his birthday cupcake!

Officially loving bath time! 

Officially loving bath time! 

Dapper boy in his first suit! 

Dapper boy in his first suit! 

Testing out a Zippy Voyage medical stroller 

Testing out a Zippy Voyage medical stroller 

Gait trainer trial! 

Gait trainer trial! 

Just standing in my new AFOs! 

Just standing in my new AFOs! 

I masy not eat by mouth, but I am not afraid to get messy! 

I masy not eat by mouth, but I am not afraid to get messy! 

New shoes...dogs that squeak! Can you tell mom got these for me? 

New shoes...dogs that squeak! Can you tell mom got these for me? 

SEEING myself in the mirror! 

SEEING myself in the mirror! 

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